tag:blogger.com,1999:blog-9102164943781687699.post8182372515342852892..comments2023-06-08T08:13:03.095-04:00Comments on Team Ewan: Finding Normalkirstenhttp://www.blogger.com/profile/09789771023962578029noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-9102164943781687699.post-69842839848466273502010-09-15T13:30:50.148-04:002010-09-15T13:30:50.148-04:00Sending big prayers your way... hoping for only th...Sending big prayers your way... hoping for only the best for you all!Angiehttps://www.blogger.com/profile/00213415994985361120noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-24779868050457133962010-09-14T15:32:13.333-04:002010-09-14T15:32:13.333-04:00holding you today...holding you today...Anonymoushttps://www.blogger.com/profile/15924061349390319473noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-54941620502190034312010-09-14T12:21:49.242-04:002010-09-14T12:21:49.242-04:00The anticipation for what you are about to go thro...The anticipation for what you are about to go through is probably the worst feeling in the world to have. While we didn't know about Logan's diagnosis until weeks after his birth I can tell you from my own anticipation of events like surgeries, procedures and check ups it is excruciatingly painful. We do put ourselves through hell with the worrying and it is to be expected. It is Stefeniehttps://www.blogger.com/profile/04278714232697499851noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-839711697990480682010-09-14T09:42:01.887-04:002010-09-14T09:42:01.887-04:00I know exactly the way your feeling...I've bee...I know exactly the way your feeling...I've been following your blog for several weeks now. We will be having our babies around the same time. I went to the doctor yesterday and they will induce on Oct 4th. My little boy has Hypoplastic Left Heart Syndrom. I am so excited about meeting my little guy but its also the scariest time of my life. I can remember getting his nursery ready a Wendyhttps://www.blogger.com/profile/02834751608997553584noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-84494993427567968482010-09-14T01:27:54.194-04:002010-09-14T01:27:54.194-04:00praying, praying, praying...praying, praying, praying...Lisahttps://www.blogger.com/profile/09921826593766725264noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-87592397508017938062010-09-13T23:40:04.708-04:002010-09-13T23:40:04.708-04:00I am hoping and praying with you as you prepare an...I am hoping and praying with you as you prepare and pray -- hoping you can bring him home and love him like you want to. (I thought that was So beautiful that I had to copy and reword it and pray it for you.) I loved reading your post as you shared your heart. I can't fathom what you are going through. know I am praying for you and for James and for Ewan. Our God is big and has you all Shayhttps://www.blogger.com/profile/16684136436505856179noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-18707157367757501082010-09-13T20:53:19.228-04:002010-09-13T20:53:19.228-04:00you are doing great lady! hang in there. Everythin...you are doing great lady! hang in there. Everything you are doing is normal to you..for now. That's what count. Just focus on the current day!<br /><br />xoxoIn This Wonderful Lifehttps://www.blogger.com/profile/06467383580516146911noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-74917157341200023382010-09-13T19:20:57.376-04:002010-09-13T19:20:57.376-04:00Just so amazing to me that someone else out in thi...Just so amazing to me that someone else out in this world feels so much like I do... I could have written almost every bit of that.. we will be having our baby next week, and he has HRHS. The two things God has me working on is trusting, and being thankful. Over and over He has pointed me to focus on those two and let everything else be up to Him. I'm praying for your family, and sending Veronicahttps://www.blogger.com/profile/17460032414360513372noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-91699531441657930622010-09-13T18:37:23.317-04:002010-09-13T18:37:23.317-04:00No amount of planning emotionally can prepare you ...No amount of planning emotionally can prepare you for what is to come, be it positive or something less than that. Relish in the time you have with him now, inside the womb, and stay positive. He can feel everything you feel. You have tons of prayres going up for you and baby Ewan. Hugs pretty lady.Anonymoushttps://www.blogger.com/profile/00589334911815524759noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-65048220532509078982010-09-13T18:20:05.069-04:002010-09-13T18:20:05.069-04:00This post broke my heart over and over again to re...This post broke my heart over and over again to read it. That these preparations right now are more for you than for him, that your son is alive now and you're going to honor that, that you sat and sobbed as you folded his tiny clothes, that no one knows how this will go or provide any reassurance at the moment. <br /><br />Everything is so out of your hands. It must be one of the most christiannehttps://www.blogger.com/profile/06278757714101308785noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-45209128329352439962010-09-13T17:15:50.889-04:002010-09-13T17:15:50.889-04:00hi mama (=
I was reading and feeling the pain of e...hi mama (=<br />I was reading and feeling the pain of experiencing motherhood so differently then we ever expected. I guess I am better now, but it isnt easy accepting your own new normal which is anything but typical, and feeling left out because of it. Ive thought at times how helpful it would have been to know about Emily before she was born. You already have a huge support system, probably Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-62495232780778694092010-09-13T16:21:09.634-04:002010-09-13T16:21:09.634-04:00Remember that many heart parents suffer from PTSD ...Remember that many heart parents suffer from PTSD (I really believe that) <br /><br />We were diagnosed very very early in our pregnancy. As the months flew by, we were preparing for both her birth and a possible funeral as well. I made the choice not to do anything with her room for that reason (and to this day regret that decision - thanks to my Mom for taking charge while we were still in Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-24558221890458359342010-09-13T15:39:12.912-04:002010-09-13T15:39:12.912-04:00What you are going through right now-all the emoti...What you are going through right now-all the emotions-have to be so draining on you. I wish I knew some magic thing to say to make you feel better. I've never had my heart kids diagnosed until after birth so I have no idea what waiting is like. <br /><br />I have met some awesome kids who have TOF and are very active toddlers. I pray that Ewan is the same :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-39620341320477323572010-09-13T13:19:49.075-04:002010-09-13T13:19:49.075-04:00So much love and so many prayers from me and mine....So much love and so many prayers from me and mine. I wish I could give you a real hug but a cyber one will have to do.Sarahhttps://www.blogger.com/profile/05220448315369951650noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-32191211442824692542010-09-13T12:51:13.004-04:002010-09-13T12:51:13.004-04:00I think it's great that you are able to verbal...I think it's great that you are able to verbalize and seperate all the emotions. They are all so overwhelming! I think it's great that you know ahead of time that Ewan has heart problems, so that he can have everyone ready and waiting for his arrival. I will admit though that I am glad I didn't know about my Emily's issues before birth. I cannot imagine how strong you are to ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-83361795559059150582010-09-13T11:56:31.773-04:002010-09-13T11:56:31.773-04:00Hang in there!!! This is the most difficult time b...Hang in there!!! This is the most difficult time by far, the waiting is excruciating. Try not to borrow trouble and just focus on right now. I have kept this quote on a little chalkboard on our wall since coming home with Maddie, "Don't let tomorrow take away from today". It's from the "Last Lecture" and really helps me regain my focus. <br /><br />Maddie has the heartKatiehttps://www.blogger.com/profile/12749308200093222013noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-70739416546759182582010-09-13T11:50:27.212-04:002010-09-13T11:50:27.212-04:00It is so important for us heart moms to do all the...It is so important for us heart moms to do all these "normal" things, even when we don't know what normal is...it's an acknowledgement that our precious little one is coming and that we have HOPE and love for them.<br /><br />I meant to leave this comment on your "advice" blog the other day: if your doctors let you (and they should), make sure you have a chance to holdDaniellehttps://www.blogger.com/profile/05609414926334179001noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-30927266050636241672010-09-13T09:08:47.318-04:002010-09-13T09:08:47.318-04:00Praying for you in the last few days! Pulmonary at...Praying for you in the last few days! Pulmonary atresia is scary ... difficult to diagnose, and difficult to correct. However, it CAN be done. Take it from your commenter above about her little guy, and Ethan :)<br /><br />Sometimes I go back and forth about whether it's better to be diagnosed prenatally or to find out at birth. I, too, would have had a difficult time towards the end of myjoyehttps://www.blogger.com/profile/16430260308766122280noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-68331995469434539642010-09-13T08:41:13.476-04:002010-09-13T08:41:13.476-04:00You remain in my thoughts and prayers as you conti...You remain in my thoughts and prayers as you continue through your journey. Enjoy your pregnancy and all of the showers, precious moments, and feelings that you will be going through. Know that God will be there for your family.Wodzisz Familyhttps://www.blogger.com/profile/03402962907991995167noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-44184466990383600102010-09-13T08:34:38.439-04:002010-09-13T08:34:38.439-04:00It's good that you are going through these emo...It's good that you are going through these emotions...I know it doesn't feel like it right now. You will find your new normal, but know that it does take time to grieve the "normal" you won't have too. That was the hardest part for me by far. I didn't really expect that I would grieve over such a thing...and didn't recognize it as that until later.<br /><br />Our Tarahttps://www.blogger.com/profile/13202621464167811581noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-74042663846950935072010-09-13T08:28:46.171-04:002010-09-13T08:28:46.171-04:00We are praying your your strength, James and his s...We are praying your your strength, James and his strength and that baby Ewan is just being a little turkey and that when he gets out he will say "what's all the fuss?"<br /><br />Healing and miracles, the mark of Christ in his Christ followers. <br /><br />We look for both for all 3 of you. <br /><br />Peace be with you, peace be in you and may peace abound through you.jcubsdadhttps://www.blogger.com/profile/08441530898226119655noreply@blogger.comtag:blogger.com,1999:blog-9102164943781687699.post-4658992679916973642010-09-13T07:16:04.964-04:002010-09-13T07:16:04.964-04:00Praying for you, James and Ewan. I can't imag...Praying for you, James and Ewan. I can't imaging the roller coaster that you are on, but I know that your heart and baby's heart are in the Father's hands. May you feel His embrace today.Anonymousnoreply@blogger.com