James and I went to visit him tonight so I could pump and we could see him one last time before we went to bed. Just after I finished, he opened his eyes. They were open for the briefest second this morning I was in there, but tonight was amazing: you could tell he's on a lot of medicine so he doesn't get uncomfortable, but he was awake. And his stats stayed stable, and he showed no signs of discomfort. Amazing!!
And yes, we got video. And yes, I'm going to share it with you. It melted my heart to see his eyes again!!
Prayer needs & short-term goals:
- They're further weaning the ECMO to 60 by tomorrow morning at 7 am. They're holding steady at about 82 right now and will keep him there until midnight, gradually stepping him down toward the morning. Please pray that he tolerates this well and that his body takes over what it's supposed to do.
- Depending on how he tolerates this wean, there may also be a one-hour trial with the ECMO clamped off to see how he does. This kind of trial is pretty standard for patients on ECMO. We would pray that he tolerates this well and that this strong boy (whose first name also means "warrior") will exceed expectations here, too.
I'm trying not to look too far forward into the future, but if everything goes as we hope, we're looking at the following BIG steps toward his recovery:
1) Getting off ECMO
2) Closing the chest (this changes the dynamics of his breathing, so this is a huge deal when this takes place)
3) Weaning him off the breathing tube
Many thanks for your continued support and prayers.
GO TEAM EWAN!!