Showing posts with label say their names. Show all posts
Showing posts with label say their names. Show all posts

17 October 2011

Learning From "Say Their Names"

When I started pulling together the details for the idea I had of what would later become the Say Their Names project, I never in my wildest dreams thought I would get 239 names.

239 names

It is 239 more names than it should be. But what I loved about doing it is that those are names that we all remembered together, our voices and stories proclaimed in unison. Losing a child can make a parent feel incredibly isolated and marginalized, wondering if we are the only ones who will ever acknowledge the existence of the little one we lost -- but none of us were alone in our remembering on October 15. And I hope our children were honored by what they saw.

The project spanned some decades worth of losses. Names were gathered from losses that occurred over forty years ago, all the way up to just days before the video was made. All types of losses were represented: miscarriage, stillbirth, and the death of a child before one year old. Names were submitted by mothers and fathers, aunts and uncles, brothers and sisters and friends. All of them care, and all of them continue to feel the absence of those who aren't here.

this christmas
Having no baby to hold after Ewan died, I often clung to and slept this little sleep sheep, our first baby gift and the one thing that we brought to the hospital for him to keep vigil at his bedside.

I got some of the most incredible messages from you. People saying that this is the first time someone else had acknowledged their loss as a loss. People saying that they've never heard anyone else say their child's name out loud before. People saying they were in tears hearing all those names. And sadly, people who are wondering if they will have another child's name to add to the list next year.

In doing this video, I learned some important things. I have to confess as to being largely ignorant about how the rest of the world treats miscarriage. James and I have always cherished our pregnancies from the very beginning -- as soon as we had a positive pregnancy test, I kid you not, we shared the news -- I was calling grandma and grandpa and telling friends at work. We both appreciate and understand the reasons why people wait to share their news until they hear a heartbeat, or until the second trimester (especially when there have been prior losses). But our thinking was:
She or he may only be the size of a speck, but there is a new person here, and we want to celebrate that. We want people to know that we are hoping and planning for and expecting a baby -- that there is, even now, a new member of our family. And God forbid anything should go wrong in this pregnancy, but if it does -- we hope that those who celebrate with us at this good news will also mourn with us in what we've lost, because it is a loss. Because even if we didn't know the child we bore for a little while -- even if we didn't get to know if it was a boy or a girl and get to give them a name or hold him/her in our arms , we still have lost a member of our family.
So it surprised me just how often I saw a comment of thanks for acknowledging the loss of miscarriage alongside those losses like my own. Our losses may be very different in the particulars of how they occurred, but they are still losses and as such, are all horrible and awful -- just horrible and awful in different ways.

After hearing from those of you who have experienced the loss of miscarriage (many of you multiple times), I learned just how little those losses are acknowledged in the world at large. I learned from you just how taboo it is to speak of it. I can promise you that this will never be a space where you will find miscarriage dismissed as anything less than the loss of a child. I'm not someone who sees the point in measuring losses one against the other to see whose was worse. Even if you could win that contest, what would you gain? Losing a child is losing a child and no matter how that occurs, the loss cannot be quantified.

Now, you may not be able to say to me, nor I to you, "I know exactly how you feel," and that's perfectly okay -- the particulars of what we've experienced are incredibly different. The traumas we've suffered may look nothing alike. But we are both mothers without a child to hold. We both mark milestones with a piercing ache in our hearts. We all know what that is like.

Whether by miscarriage, stillbirth, or death before a first birthday, we all know what it is to lose a child. And we all know how important it is to acknowledge that loss for what it is.

So as long as any of us have voices, we will say their names.

15 October 2011

Say Their Names :: 2011

Today, we remember together.

Today, we say their names out loud.

Because they were here. Because they ARE here. Because they are loved. 

Because they matter.

Because our hearts broke when they left us.

Because we cannot and will not forget, even if the rest of the world does --
even if the rest of the world acts as though they were never here.


say their names - banner


A brief disclaimer:
For organizational purposes, children's names or remembrances are said aloud in alphabetical order by first name, or by the first word of how they were submitted. This means in some cases that your submission will be under "B" for "Baby" and your last name, "M" for "Miscarriage", etc. This also means that some families with multiple losses submitted can expect to hear their children's names spoken at different points in the video. To see the order in which names are spoken, see the list below. Links have been included when provided in the comments.





We Remember:
Abigail Renee Moothart
Abree Faith
Addison Leah Sheppard
Aimee Isabel Greene
Alex
Alexis Jade Holliday
Alianna Raquel Trujillo
Alice Marie Kluge
Amanda Gabrielle Mendez
Amanda Maxine
Annie Grace Sabin
Ayden Simon Peterson
Baby Bestgen
Baby Carr
Baby Carr
Baby Cook
Baby Crenshaw
Baby Crenshaw
Baby Egan
Baby Enzor
Baby Felmley
Baby Gabriel Bonnett
Baby Goble
Baby Greene
Baby Hagen
Baby Harrison
Baby Harrison
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Holliday
Baby Hope
Baby Krug
Baby Krug
Baby Krug
Baby Lansford
Baby Lansford
Baby Lawlor
Baby Matthew John
Baby Nahas
Baby Pearson
Baby Ransym Bonnett
Baby Reenders
Baby Rivers
Baby Rochelle
Baby S
Baby Sanders
Baby Schappell
Baby Shaffer
Baby Smelser
Baby Smelser
Baby Thomison
Baby Thornton
Baby Twins DuChien
Baby Viergutz
Baby Williams
Baby Williams
Baby Wilson
Baby Wilson
Benjamin Friel
Benjamin James
Benjamin Joseph Moothart
Beth McCormick
'Blueberry' Sardegna
Brandon Ty Garner
Brantley McNeil
Brenna McNeil
Briella Elisa Rocha
Brody Michael Lukehart
Brooke Friel
Brylea Marie Branham
Camille Katoch
Campbell James Dronen
Carlin Hedrick
Chance Odin
Charlotte Jean Loeser
Chavonne Larue
Christina Dahlia Lopez-Shafer
Colin Hunter Brown
Dallas Caldwell
Daniel Robert
Daniel TR Vidins
David James
Denise Rochelle
Donald (Donny) Beatty Leavitt
Dorothy Ann Carr
Duane Schultz Jr
Elianna Sofia Essery
Elijah Christopher Lovelace
Elizabeth Jane
Elizabeth Lynn
Elizabeth Mae
Emma Abigail Dronen
Emma Eiliyah
Emma Frances Mackey
Ethan Richard Reid
Eva Grace
Evan Riley Davies
Fred Bestgen
Gabriel Elijah Stoltzfus
Garrett Lee
Gideon Michael
Harlow Elizabeth Schaefer
Harper Michaela
Hayden Neal
Hezekiah Samuel Risner
Hunter Johnson
Immaculee Michelle
Isabella Ann Marie Gilman
Jacob Allen
James Matthew Mannix
Jaron Larue
Jeremy Ryan Wilson
Jesse Harding
Jessica Denise Tumminello 
Jordan Gabe
Jordan Riley Tumminello
Jordan Yvanovich
Joshua Haskins
Joy Stringfellow
Julia Rose Davies
Katelyn Rose
Katrina Suzanna Masulla
Kristina Faith Page
Lael Kluge
Leah Faith Kaler 
Little One
Logan Shaffer
Loved One 2004
Loved Two 2010
Loved Three 2011
Lucy Wright
Luke Aaron Sexton
Mackenzie Grace Bryan
Madelyn Rose Sage-Lauck
Maggie Elizabeth or Tomas Carmelo
Mary Wright
Matthew David Long
Matthew Ross Beach
Matthew Salvas
Miscarriage @ 5 weeks
Miscarriage @ 6 weeks
Monica Sue Faifer
My Two Angels
Naomi
Natasha Anastasia Forgie
Nicholas O
Parker Kennedy Nahas
Quirt Otis
Rachel Campbell Smith
Randy Jay Dickhausen.
Rebekah Kay
Robert Emmanuel Moothart
Rory Mae
Rosalynn Ashbrook
Rowan Steppe-Viergutz
Ryan Friel 
Salina Faith Johnson
Samuel
Samuel Stringfellow
Sara Elizabeth Moothart
Sarah Beatrice
Sawyer Patick
Sean Robert
Seth Douglas Bonnett
Snowflake Baby Wright
Snowflake Baby Wright
Snowflake Baby Wright
Solomon Jedidiah Biggs
Sophia Alexis Davies
Sophia Lynn Dumontel
Sophia Marie Mackey
Susan Heartly
Tabitha Grace Risner
Taylor Benjamin Enzor
Taylor Layne Anderson
Teddy James Thomas
Tripp Shelton Taylor
Troy Michael Potts
Vincent Elias Johnson
Zachary Logan Hagin


Not included in the video:
Parker Phoenix
Baby Noah Doblar
Baby Doblar
Angel Unaware

14 October 2011

221 Names & Counting ...

I had no idea it would be this many. Really. I'm so honored that you're trusting me with this. I've heard from mothers and fathers, aunts and uncles, friends and cousins. They all care. And for all of us who have lost, whether or not those names are on this list, these names carry incredible weight.

say their names

Someone asked me yesterday why it was so important and meaningful to hear your child's name spoken out loud. How is it that something so simple carries such weight and meaning to those of us who have had to say goodbye? I imagine there are many and various ways those of us who have experienced this type of loss could answer this question, but answering for myself, I had to say that it is because it is validating.

It says to me: I recognize your child as a unique person. I recognize that this child is a product of your love and your hope. I recognize that this child is a part of your family. I recognize that this child's absence leaves a wide open space in your heart that will not be filled by anything else. Saying my child's name out loud says: they were here, they are here, and they will always be loved and remembered.

There's still some time to submit names if you haven't had a chance to do so yet. Anyone (even if you don't have a Google account or any other type of online account) can submit a child's name to be spoken aloud in the video. I've requested the names be submitted by 3 pm Eastern Time, but (this is importantfeel free to keep on submitting them as long as the comments remain open. If the comments are still open, this means I haven't started working on the video yet. So feel free!

To submit a name: 
1. Go to this post.
2. Scroll down to the bottom of the post.
3. Click on the link where it says "Post a Comment."
4. Scroll to the bottom of the comments section and type your child's name in the available box. Pronunciation tips for names are most welcome! It's important to me that your child's name is said correctly. If you want me to link back to a blog or webpage, please feel free to include that in the comments section as well.
5. Choose the identity for submitting your comment (your Google Account, Name & URL, etc.). If you don't have any of these online accounts, select "Anonymous."
6. Click "Publish Your Comment."
Oh, and another thing.
This article speaking to the heartbreak of infant loss has been making the rounds on Facebook and in other social media, but if you haven't had a chance, I highly recommend reading it. It speaks candidly and openly as to what those of us who have lost a child experience. It's incredible when someone can really put a finger on what so many of us lack the words for.

Many, many thanks to all who have participated. Tomorrow, we remember together. I look forward to sharing this time with you.


Much love,
Mama Ewan

10 October 2011

Why It Matters

I wanted to offer a heartfelt thanks to all of you who have submitted names for my memorial project, "Say Their Names." The trust you're giving me is a sacred one, and not something I take the least bit lightly. I know that each name represents your love and your heartache. Each name represents a human life that ended too soon. Each name represents a story, a family, a hope, and an unspeakably deep grief.

Each name takes an abstract "1 in 4" statistic and makes it deeply personal. 

And that's why it matters.

I have heard and read a lot about how child loss from miscarriage, stillbirth, and early infant death is a taboo subject -- something that nobody wants to talk about. And while I don't doubt that this is at least partly true, I don't think it paints a complete picture. I say this because I see online communities where we are talking about it openly. I see women bravely speaking up and writing about their losses. And there are a lot of us out there.

Before we received the prenatal diagnosis and before we lost Ewan, I had no idea that many of my friends had already suffered miscarriages. I knew what stillbirth was, and that babies died before ever seeing their first birthdays, but the fact -- though incredibly sad to me -- was not a personal one. Where I was concerned, it was an abstract notion. There were no faces attached to those facts. There were no names.

For me, there was no personal application in that information, and so it was about as compelling a fact as knowing the average annual rainfall in Greenland.

So I wonder if the topic so frequently called taboo suffers in equal measure from the fact that there are people out there who know very well that children die in pregnancy or in infancy, but the information isn't the least bit personal. It hasn't happened to them and it hasn't happened to any of their friends. Even if it had, what could they do?

The truth is, they probably couldn't do much. But if they heard a name, saw a face, got glimpses of the larger story -- then they just might talk about it.

Raw facts aren't so compelling or terribly memorable, but real people and their stories are. 

And then say someone like you or I comes along with our losses in tow, maybe it wouldn't seem so taboo to either of us. Chances are, they would tell a friend or two. Chances are, it would be a little more personal. We just might be able to talk about it.

When it comes to things like Pregnancy and Infant Loss Awareness Day, and things like the I Am the Face campaign -- and things on a smaller scale like I'm doing here -- that is my hope. That by showing our faces, saying their names, making our stories available, those for whom the notion of miscarriage, stillbirth, and early infant death isn't personal will see the face of someone they might know. They will hear the name of their own child, or the child of a friend . It will bridge the gap between mere facts and real life. They will see their neighbor, their sister, a co-worker. And it will click: these aren't just statistics, but this is real.

They just might think: "In fact, this could be me."

I felt incredibly alone in the days after that diagnosis because I felt like I was the only one. And when Ewan died, it was an incredibly lonely feeling -- but by that time, I had learned about many of my friends' losses for the first time, and I had met many more who were fresh in their grief like me. Though they were different in their particulars, it was helpful to know many others who knew the unspeakable sense of loss and grief that comes from losing a child, whether early in pregnancy or after his birth. They knew intimately that feeling for which there are no words.

One of the things that excites me most about doing this is knowing how powerful each of our individual stories and each of these children's lives truly are -- and when we say all these names together, each name standing for a real human story, each name tearing the veil off an abstract statistic and making it personal  -- then our stories don't stand alone or under a veil of anonymity, but as a collective and deeply personal whole. We give the statistic a face. And that's almost impossible to overlook.

Just think how powerful that is -- all those voices together.


* * * * *

say their names



There is still plenty of time to submit names for the Say Their Names project. Names will be accepted through 3 pm (EST) on Friday, October 14.

07 October 2011

Say Their Names :: For Pregnancy & Infant Loss Awareness Day

Last year, I marked October 15 for the first time. It was the first time I could be counted amongst the one in four women who lose a child to miscarriage, stillbirth, or early infant death (the CDC defines "early infant death" as the death of a child prior to one year of age). Like the others who are counted in that one in four, it has been and continues to be important to me that the life of the child I lost is not trivialized. It is important to me that my son's life is acknowledged.

say their names

On October 15 of last year, my grief was so fresh. We had buried my son less than a week prior. Something like this would not have been possible. Now there's something I'd like to do to acknowledge not just my loss, but if you are included in that one in four, your loss as well. If I'm going to do that, I need your help to make it happen.

Please take a look at the below video and consider whether or not you'd like to participate.






For a written summary of the video (or to review in writing the details included in the video), see the Say Their Names link at the top of the page.

For those of you wishing to participate, please make your submissions no later than Friday, October 14 by 3 p.m. (EST).

If you wish to include a Say Their Names badge on your own blog as a way of inviting others to participate, there is a badge available at the top of the sidebar on the left. The badge will link to the Say Their Names page at the top of the blog, which also contains a link to this post. Badge size is 220 x 147 pixels.

Or you can grab it here:

say their names